1 Introduction to clinical trials

1.1 What is a clinical trial?

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Definition

‘A clinical trial is a planned experiment on human beings which is designed to evaluate the effectiveness of one, or more, forms of treatment.’ (Altman, 1991)
‘A clinical trial is an experiment testing medical treatment on human subjects.’ (Piantadosi, 1997)

  • ’An experiment is a series of observations made under conditions controlled, or arranged, by the investigator’. (Piantadosi, 1997)

  • Treatment: a drug or other form of medical treatment (e.g. surgery, radiotherapy, diet, counseling); method of organising and or delivering health care (e.g. pro-active call-centre based treatment support (PACCTS), education leaflet or monitoring App).

Classification of clinical trials is done by purpose, generally, or by phase in drug developmemt.

1.2 Classification by Purpose

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In general settings trials are often defined by their purpose:

therapeutic

treatments e.g. drug therapy: formoterol/salbutamol for asthma

prophylactic

primary and secondary prevention (e.g. aspirin for stroke, statins for heart disease, vitamins, vaccines)

intervention

studies involving drugs, behaviours, procedures (note: not necessarily at the individual level, e.g. community-based, general practice-based)

evaluative

e.g. evaluation of screening programs for breast cancer/PSI levels for prostrate cancer.

1.3 Classification by Phase

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Phase I

concerns Pharmacokinetics/Pharmacodynamics (e.g. the absorption, distribution, metabolism and excretion of a drug or vaccine) and drug safety: toxicity/tolerability (MTD). Typically small trials involving healthy volunteers.

Phase II

concerns initial clinical investigation into dosing schedules and early indications of efficacy.

Phase III

Randomised Controlled Trial (RCT) aimed at full scale evaluation (efficacy) of a new, experimental, treatment compared to standard therapy or placebo, acting as a control. This is the pivotal phase with larger samples.

Phase IV

effectiveness and post-marketing surveillance uncommon side effects, long term effects and efects in sub-populations.

1.4 The Research Protocol

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A research protocol is a formal document specifying the research plan for a clinical trial. It is the single most important quality control tool and:

  • necessary when applying for a grant to carry out a trial

  • required for local ethics committee review

  • provides sufficient detail to serve developmental, ethical and peer review purposes

  • guidelines: “Good Clinical Practice” (GCP), ICH E6

  • publication is encouraged, examples:
    http://controlled-trials.com/mrct http://thelancet.com

Features of the Research Protocol

  • background and clear statement of study objectives

  • information on patient selection (in/ex-clusion)

  • details of treatment schedules

  • methods of evaluation patients response to treatment

  • the general trial design

  • the recruitment and methods of randomisation of patients

  • how patient consent was acquired

  • the required study size

  • details of the planned monitoring of trial progress

  • explicit details of the forms and data handling

  • the intended handling of protocol deviations

  • plans for the statistical analysis

  • details of administrative responsibilities.

(Pocock, 1983.P28-31)

1.5 International Guidelines

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Many bodies have written and adopted guidelines for Good Clinical Practice, particularly for assessing safety and efficacy of medicinal products:

  • Committee for Proprietary Medicinal Products (CPMP)

  • International Conference on Harmonisation of technical requirements for registration of pharmaceuticals for human use (ICH). Adopted on 1st May 1996 by European Union, the United States and Japan

    • ICH E6: Guideline for Good Clinical Practice

    • ICH E9: Statistical Principles for Clinical Trials

    • ICH E10: Choice of control group in Clinical Trials

    http://www.ema.europa.eu

  • Food and Drug Administration (FDA): US Dept. of Health and Human Services Agency

    http://www.fda.gov

  • guidelines also available from International Federation of Pharmaceutical Manufacturers Associations

    http://www.ifpma.org

1.6 Effect, Efficacy, Effectiveness and Efficiency

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Effect

‘difference between what happened to the patient as a result of treatment and what would have happened if treatment had been denied’, (Senn, 1997).

Efficacy

‘the true biological effect of a treatment’ (Piantadosi, 1997, p 521 ) and relates to the question: Does the treatment work under (idealised) study conditions?

Effectiveness

‘the effect of a treatment when widely used in general practice’ (Piantadosi, 1997, p 521) and relates to the the question: Does the treatment work in practice? (i.e. in the real world).

Efficiency

the economics of treatment (time and cost related).

1.7 Trial Motivation: Efficacy versus Effectiveness

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Efficacy trials (phase II/III)::

  • purpose: show efficacy of a treatment. Phase II trials gauge efficacy and phase III trials aim to confirm efficacy

  • focus on internal validity, homogeneous cohort, greater degree of compliance.

Effectiveness trials (phase IV)::

  • sometimes called “public health trials”

  • purpose: show effectiveness of a treatment

  • focus on external validity, heterogeneous cohort, larger than efficacy trials.

Further reading: Piantadosi (1997), Section 8.4.2.